Scarlet’s Story - Part 2: Another Surgery, More Shots & Tics

Age: 2 - 7 months old

 

November 2013. Scarlet came home from the hospital with an ostomy bag, which was awful, but we were thankful she didn’t also need a feeding tube. Over the next few months, she seemed to be gaining weight, eating well, and eliminating okay but would cry inconsolably. Her pediatrician and GI doctor thought she might have had GERD or acid reflux and prescribed Prilosec/Omeprazole. It didn’t seem to help much at all. Keep in mind that I did not realize that she had heavy metal poisoning at this point. I did not find out until we did a hair follicle test that confirmed it. I also didn’t know that antacids contain aluminum. I later found out that there have been reports of infants with healthy kidneys showing elevated blood levels of aluminum from taking antacids, like omeprazole/Prilosec [1]. And that Citrate increases the absorption of aluminum and can commonly be found in Enemas and prescription formulas [2].

 

In 2014, We would spend the year making sure Scarlet got the best of care, which included all of her well-baby visits and all of her recommended immunization shots [3].  At 4-months old, Scarlet had received her 2-month shots. I remember asking her doctor at that time if it was okay to give a sick baby their shots. He assured me that being sick meant having an active fever and flu-like symptoms, which she did not have. She was, however, on an ostomy bag with a history of unknown bowel dysfunction, which to me, meant ‘sick.’ So even after reading the information on the vaccine information sheet [4] that I was given while at his office, I went ahead with the shots because we had been assured that this procedure was safe for our fragile baby. And the doctor refused to supply the vaccine package inserts, stating that they needed to stay with the vial. 

 

What we should have done was reviewed the “ASK 8 BEFORE YOU VACCINATE” worksheet [5]. This is a campaign put together by the National Vaccine Information Center (NVIC) to help parents make an informed decision before vaccination. This worksheet was not available in my pediatrician’s office.  Had I read it beforehand, I would have known that I was not ready to give my baby shots on that day. Our doctor made it seem like there was a grave risk to leaving the office without the shots’ protection. It just wasn’t true. There was no Informed Consent [6], which, from my understanding, is one of the basic elements of the Nuremberg Code [7]. 

 

In March 2014, we were cleared for an ostomy reversal after great results following manometry and dye study procedures showing Scarlet’s intestines were ready to reconnect. These procedures ensured she did not have Hirschsprung’s disease [8]. So, at six months old, Scarlet had her second bowel surgery, which included reconnecting her intestines and botox injections in the sphincter. Afterward, she spent the standard five days in recovery at the hospital and went home without incident. However, during that time, we met with the surgical team to try to figure out why Scarlet was always uncomfortable and crying at home. After several consults, I was asked again if we thought it was her shots, causing her bowel issues because nobody could figure out exactly what was going on. We were sent home on an Elecare elemental formula to help aid with her digestion. 

 

In April 2014, at six months old and only five days after discharge from major surgery, Scarlet’s pediatrician talked me into vaccinating her with her 4- month round of shots [3]. She developed the usual redness and swelling at the injection site [9, 10], and this time there was another side effect, ‘tics’ [11, 12, 13, 14]. She started to jerk her head down toward her shoulder while wincing at the same time. At a later appointment, our pediatrician asked me to demonstrate them for him, and when I did, he proceeded to snicker at me and dismissed the reaction. I was shocked and embarrassed. When I asked him if he would report it, he gave a firm ‘no’ and explained that he would only report real reactions [15]. When I asked what those reactions were, he said, “fainting, shock, or death.” When I then inquired why a ‘tic’ was not considered a reaction, I was told that it could have been caused by anything, including the new formula. He insisted that he had no reason to report her reactions. So he didn’t. I left the appointment upset and unempowered. I had no idea who to turn to for help. I found out later that doctors are required to inform the Vaccine Adverse Events Reporting System (VAERS) [16] of all reactions reported by their patients, no matter how small [15]. 

 


 

PART 2 - REFERENCES:

 

[1] U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES: TOXICOLOGICAL PROFILE FOR ALUMINUM - 2008

https://www.atsdr.cdc.gov/toxprofiles/tp22.pdf

 

[2] The Effect of Oral Bases on Enteral Aluminum Absorption - OCTOBER 1990

“Citrate thus appears to augment gastrointestinal aluminum absorption markedly.”

https://jamanetwork.com/journals/jamainternalmedicine/article-abstract/613960

 

[3] CDC Recommended Childhood Immunization Schedule for Birth to 18 years old.  

Are eight or nine antigens too many for one visit?  

1. Pediarix = DTaP-HepB-IPV (Diphtheria, Tetanus, Pertussis, Hepatitis B, Polio)  

2. ACT-HIB = HIB (Haemophilus influenza type B)  

3. Prevnar13 = PCV13 (Pneumococcal)  

4. RV5 (Rotavirus)  

5. Flu Shot

https://www.cdc.gov/vaccines/schedules/hcp/imz/child-adolescent.html

 

[4] Vaccine Information Sheet 

*This is NOT a Package Insert with Ingredients and Reactions! 

https://www.cdc.gov/vaccines/hcp/vis/index.html 

 

[5] Ask 8 Before you Vaccinate 

“If you decide to vaccinate, ASK THESE 8 QUESTIONS FIRST:

  1. Am I or my child sick right now? (This includes recent surgeries, procedures, accidents) 

  2. Have my child or I had a bad reaction to a vaccination before? 

  3. Do my child, or I have a personal or family history of vaccine reactions, neurological disorders, severe allergies, or immune system problems?

  4. Do I know the disease and vaccine risks for myself or my child? (What are the chances of getting the disease being vaccinated for?)

  5. Do I have full information about the vaccine’s side effects? (From reviewing the package insert)

  6. Do I know how to identify and report a vaccine reaction? (Vaccine Adverse Event Reporting System (VAERS) is used to keep track of reactions)

  7. Do I know I need to keep a written record, including the vaccine manufacturer’s name and lot number, for all vaccinations? (Did your doctor do this for you? Did they do it correctly?)

  8. Do I know I have the right to make an informed choice? (You can say NO!)

*If you answered YES to questions 1, 2, and 3, or NO to questions 4, 5, 6, 7, and 8 and did not understand the significance of your answer, you may want to research more before administering those shots. These questions are designed to educate consumers about the importance of making fully informed decisions.”

https://www.nvic.org/Ask-Eight-Questions.aspxhttps://www.nvic.org/Ask-Eight-Questions.aspx

 

[6] American Medical Association - Informed Consent: Code of Medical Ethics Opinion 2.1.1

“The process of informed consent occurs when communication between a patient and physician results in the patient’s authorization or agreement to undergo a specific medical intervention. The physician should include information about the burdens, risks, and expected benefits of all options, including forgoing treatment.”

https://www.ama-assn.org/delivering-care/ethics/informed-consent

 

[7] U.S. Department of Health & Human Services: Ethical Codes & Research Standards

Ethical Codes: Nuremberg Code: “The voluntary consent of the human subject is absolutely essential before the acceptance of an affirmative decision by the experimental subject, there should be made known to him the nature, duration, and purpose of the experiment; the method and means by which it is to be conducted; all inconveniences and hazards reasonably to be expected; and the effects upon his health or person, which may possibly come from his participation in the experiment.”

https://www.hhs.gov/ohrp/international/ethical-codes-and-research-standards/index.html

 

[8] National Organization for Rare Disorders (NORD) - Hirschsprung Disease - 1989, 1992, 1994, 1996, 1997, 2005, & 2017

https://rarediseases.org/rare-diseases/hirschsprungs-disease/


[9] Post-vaccination granuloma due to aluminum hydroxide - APRIL 2001

“A well-known reaction due to aluminum absorbed vaccines.”

https://pubmed.ncbi.nlm.nih.gov/11373585/

 

[10] Unexpectedly high incidence of persistent itching nodules and delayed hypersensitivity to aluminum in children after the use of adsorbed vaccines from a single manufacturer - DECEMBER 2003

https://www.researchgate.net/publication/9019531_Unexpectedly_high_incidence_of_persistent_itching_nodules_and_delayed_hypersensitivity_to_aluminium_in_children_after_the_use_of_adsorbed_vaccines_from_a_single_manufacturer

 

[11] Thimerosal exposure and increased risk for diagnosed tic disorder in the United States: a case-control study - JUNE 2015  

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4961900/

 

[12] Temporal Association of Certain Neuropsychiatric Disorders Following Vaccination of Children and Adolescents: A Pilot Case-Control Study - JANUARY 2017  

https://www.frontiersin.org/articles/10.3389/fpsyt.2017.00003/full

 

[13] Children’s Health Defense: The Association Between Thimerosal Exposure and Tics – The Advisory Committee on Childhood Vaccines (ACCV) Machinations - JANUARY 11, 2018

https://childrenshealthdefense.org/news/the-association-between-thimerosal-exposure-and-tics-the-accv-machinations/

 

[14] Vaccine preservative can cause tics - SEPTEMBER 27, 2007 

https://www.google.com/amp/s/www.theglobeandmail.com/amp/life/vaccine-preservative-can-cause-tics/article18146288/

 

[15] Adverse reactions to Vaccines – What to Report

“Since 1986, it has been required by law for doctors and vaccine providers to report hospitalizations, injuries, deaths, and serious health problems following vaccination to VAERS.”

https://www.focusforhealth.org/vaccine-adverse-events-reporting-system/

 

[16] Vaccine Adverse Events Reporting System

https://vaers.hhs.gov/

Scarlet's Kids Foundation, Inc. is a nonprofit 501(c)(3) public charity TIN# 47-5355300.

All donations are 100% tax deductible        © 2015-2020 Scarlet's Kids Foundation Inc.

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